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How to Make the Research Agenda in the Health Sciences Less Distorted
distorted research agenda neglected diseases health sciences medical sciences biomedical research pharmaceuticals patents intellectual property
2016/5/30
A well-known problem in the health sciences is the distorted research agenda: the agenda features too little research that is tailored to the health problems of the poor, and it features too little re...
What consent model is ethically justifiable in cancer population research?
cancer population consent model
2017/4/10
The important role that explicit informed consent plays in the conduct of research cannot be denied. Inhumane medical research has prompted over many decades the articulation of guidelines, legislatio...
Consent Issues Raised by Observational Research in Organisations
human subjects research ethics employees workplace observation participant-observer
2015/7/30
Dr. Themis and her team of university researchers are building tools to increase the productivity of software engineers. Their research is performed in collaboration with a company that may use the to...
A Bibliometric Analysis of an International Research Ethics Trainee Program
bioethics education bioethics scholarship bibliometrics citation analysis
2014/11/17
We used bibliometric analysis to evaluate the citations associated with publications by trainees in the Fogarty International Center’s International Research Ethics Education and Curriculum Developmen...
To be or not to be - a research subject
Biomedical Research Human Experimentation Informed Consent Patient Education Patient Rights Research Ethics Research Subjects
2014/11/17
Most people do not know there are different kinds of medical studies; some are conducted on people who already have a disease or medical condition, and others are performed on healthy volunteers who w...
Pediatric assent for a study of antiretroviral therapy dosing for children in western Kenya: a case study in international research collaboration
assent pediatric assent children
2014/11/17
Multinational collaborators in health research face particular ethical challenges when conducting studies involving vulnerable populations such as children. We use an example from our first attempt to...
A Needs Assessment to Build International Research Ethics Capacity at Moi University
Research Moral and ethical aspects Moi University Indiana University School of Medicine Medicine Research Medical care Needs assessment
2014/11/17
International collaborators in biomedical sciences face ethical challenges in the design,review, and conduct of research. Challenges include differences in research ethics capacity, cultural differenc...
What Makes International Research Ethical (Or Unethical)?
International Research Ethics Bioethics Informed consent (Medical law) Medical ethics
2014/11/17
First lecture in a series: International Research Ethics. February 3, 2006.
Outcome of a research ethics training workshop among clinicians and scientists in a Nigerian university
ethics clinicians
2008/11/14
Background
In Nigeria, as in other developing countries, access to training in research ethics is limited, due to weak social, economic, and health infrastructure. The project described in this artic...
When research seems like clinical care: a qualitative study of the communication of individual cancer genetic research results
communication clinical
2008/11/14
Background
Research ethicists have recently declared a new ethical imperative: that researchers should communicate the results of research to participants. For some analysts, the obligation is restri...
How do we know that research ethics committees are really working? The neglected role of outcomes assessment in research ethics review
ethics committees really working
2008/11/14
Background
Countries are increasingly devoting significant resources to creating or strengthening research ethics committees, but there has been insufficient attention to assessing whether these comm...
Is the qualitative research interview an acceptable medium for research with palliative care patients and carers?
medium interview
2008/11/14
Background
Contradictory evidence exists about the emotional burden of participating in qualitative research for palliative care patients and carers and this raises questions about whether this type ...
Clinical research without consent in adults in the emergency setting: a review of patient and public views
adults emergency setting
2008/11/14
Background
In emergency research, obtaining informed consent can be problematic. Research to develop and improve treatments for patients admitted to hospital with life-threatening and debilitating co...
Health Research Ethics Committees in South Africa 12 years into democracy
Ethics Committees South Africa
2008/11/13
Background
Despite the growth of biomedical research in South Africa, there are few insights into the operation of Research Ethics Committees (RECs) in this setting. We investigated the composition, ...
Informed consent for research in Borderline Personality Disorder
Borderline Personality Disorder consent
2008/11/13
Background
Previous research on informed consent for research in psychiatric patients has centered on disorders that affect comprehension and appreciation of risks. Little has been written about cons...